Pessoas com doenças raras: nada sobre elas, sem elas | Anna Carolina Ferreira da Rocha | TEDxESMPU

In this video, Anna Carolina talks about the importance of recognizing the right of people with rare diseases to take ownership of their own lives and the need for their participation in creating treatment protocols. A federal public servant, speaker, writer, composer, singer, integrative therapist, inclusive model, dancer, and activist for people with rare diseases and people with disabilities. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx