Give the Gift of Research
FARA's Mission is to marshal and focus the resources and relationships needed to cure Friedreich's Ataxia (FA) by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases. Friedreich’s Ataxia is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States have Friedreich's Ataxia. Subscribe to FARA's YouTube channel / fara1998 Follow FARA on Facebook / curefa Follow FARA on Instagram / curefa_org

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An Informational Webinar with Lexeo Therapeutics: May 4, 2026

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FARA Flash Talks 2026 – Session 2

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In The Driver's Seat: Faith's Powerchair Journey

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She’s 12. She Sings Aretha Franklin… Until Simon TELLS Her to Do It Acapella! 😳

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An Informational Webinar with Solid Biosciences: May 26, 2026

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2025 FA Symposium: Living Strong: FA Community Perspectives on Exercise and Sports (Session #3)

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FARA Flash Talks 2026 — Session 1

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An Informational Webinar with Larimar Therapeutics — March 20, 2026

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2025 FA Symposium: FA & Speech Toolkit (Session #5)

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2026 Rose Ball Mission Video

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Everyone Ignored Him… Until He Played | GUITAR PRO pretended TO BE HOMELESS

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Golden Retriever Meets Completely Broken Rescue for the First Time

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Community Conversations FA Cardiac Disease Webinar | Recorded December 16, 2025

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FAM The Brave Warriors

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Why EDS is more than "just loose joints" | (MIS)Treated

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The skill of self confidence | Dr. Ivan Joseph | TEDxRyersonU

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Andrew Sullivan survived the AIDS epidemic and then had to learn how to grieve

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Community Conversations: Late Onset FA — March 31, 2026

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How to Actually Build Mobile Apps with AI in 2026 | A Complete Beginner's Tutorial

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