FARA Energy Ball 2025
FARA's Mission is to marshal and focus the resources and relationships needed to cure Friedreich's Ataxia (FA) by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases. Friedreich’s Ataxia is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States have Friedreich's Ataxia. Subscribe to FARA's YouTube channel / fara1998 Follow FARA on Facebook / curefa Follow FARA on Instagram / curefa_org
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Give the Gift of Research
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2025 FA Symposium: Living Strong: FA Community Perspectives on Exercise and Sports (Session #3)
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Community Conversations: Late Onset FA — March 31, 2026
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FARA Flash Talks 2026 – Session 2
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Golden Retriever Meets Completely Broken Rescue for the First Time
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How People With FOP Live As Disease Turns Bodies Into Bone
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NERVOUS 12-Year-Old Who Can Sing Without Opening Her Mouth Earns Mel B's GOLDEN BUZZER!
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2025 FA Symposium: FA & Speech Toolkit (Session #5)
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FARA Flash Talks 2026 — Session 1
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2026 Rose Ball Mission Video
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Community Conversations FA Cardiac Disease Webinar | Recorded December 16, 2025
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An Informational Webinar with Solid Biosciences: May 26, 2026
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She’s 12. She Sings Aretha Franklin… Until Simon TELLS Her to Do It Acapella! 😳
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JANITOR vs THE BIGGEST GUYS IN THE GYM. They Didn’t Expect THAT
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An Informational Webinar with Larimar Therapeutics — March 20, 2026
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An Informational Webinar with Lexeo Therapeutics: May 4, 2026
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2025 Simposio de la AF: Alza tu voz con FARA. ¡Defender la investigación de AF! (4)
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The FARA Fundraising Hub
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Alone During a Heart Attack? 3 Emergency Actions That Can Save Your Life!
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