An Informational Webinar with Solid Biosciences: May 26, 2026
On May 26, 2026, Solid Biosciences’ Matthew Harmelink, MD, Therapeutic Area Head of Neuromuscular, and Seth Rotberg, Senior Manager of Patient Advocacy, joined FARA to provide an update about Solid’s FALCON gene therapy (SGT-212) phase 1b study. ___________________________ FARA's Mission is to marshal and focus the resources and relationships needed to cure Friedreich's Ataxia (FA) by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases. Friedreich’s Ataxia is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States have Friedreich's Ataxia. Subscribe to FARA's YouTube channel / fara1998 Follow FARA on Facebook / curefa Follow FARA on Instagram / curefa_org
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