Fenilchetonuria, il ruolo delle associazioni per migliorare la vita quotidiana dei pazienti

For people with phenylketonuria, freedom also comes through accessible care, social inclusion, and concrete support in managing the disease on a daily basis. What are the unmet needs today? And what role do patient associations play in supporting people with PKU and their families? We spoke with Niko Costantino, Head of Institutional Affairs at Cometa ASMME and spokesperson for the eight patient associations sponsoring the "Freedom of PHEnomenal" project. We met with him at the initiative's presentation.