Sanvi's Story - Living with Dravet Syndrome
"Dravet Syndrome - it affects literally every single part of her life, every single part of our life" In this short film, Jaish and Aditi, parents to seven-year-old Sanvi, share their Dravet Journey. Help us make ‘Every Family Count’ this Dravet Syndrome Awareness Month. Please watch our video, and share far and wide, to help find undiagnosed children and adults and ensure they have the support they need; to let ALL families living with Dravet Syndrome know that we are there for them. If you’re a family living with Dravet Syndrome or know a family who is, and haven’t yet joined DSUK, we’d love to hear from you. Please visit www.dravet.org.uk for more details. With many thanks to Molly Brown at See | Speak | Hear for creating, filming and producing this video.
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