'The Story I Never Thought I Would Tell': Becky Quick Talks About Child's Rare Disease

Thirty million Americans have a rare disease. Two-thirds of those 30 million are children. There are more than 10,000 rare diseases – 95% of which don’t have an FDA-approved treatment. But despite those eye-popping numbers, millions of people continue to suffer from diseases that often go overlooked by the broader healthcare industry. Small patient populations mean drug companies and investors aren’t willing to invest in the space, and outdated regulatory frameworks make the process of developing lifesaving treatments too slow for the families that need them. CNBC’s anchor Becky Quick describes her family’s struggle with rare disease and how her experience inspired the CNBC Cures initiative. Over the next several episodes of The Path, Becky will highlight the challenges faced by millions of Americans, put a spotlight on the bottlenecks slowing progress in the rare disease space, and talk with stakeholders who have the power to bring about change. Chapters: 1:16 Introduction 3:53 Kaylie's Story 9:30 Diagnostic Odyssey 20:08 Parenting a Special Needs Child 25:33 Searching for a Cure Join us in advancing awareness and understanding of rare diseases: CNBC.com/cures Produced by: Katie Kramer, Brad Quick, Kelly Lin, Leanne Miller Edited by: John Lazration Camera: Gerry Miller, David Grogan, Marco Mastrorilli, Tara McCurrie Audio: Everett Wong Graphics by: Jason Reginato, Lindsey Jacobson Additional Footage: Getty Images, Nasdaq, Quayle Family For access to live and exclusive video from CNBC subscribe to CNBC PRO: https://cnb.cx/42d859g » Subscribe to CNBC TV: https://cnb.cx/SubscribeCNBCtelevision » Subscribe to CNBC: https://cnb.cx/SubscribeCNBC » Watch CNBC on the go with CNBC+: https://www.cnbc.com/WatchCNBCPlus Turn to CNBC TV for the latest stock market news and analysis. From market futures to live price updates CNBC is the leader in business news worldwide. Connect with CNBC News Online Get the latest news: http://www.cnbc.com/ Follow CNBC on LinkedIn: https://cnb.cx/LinkedInCNBC Follow CNBC News on Instagram: https://cnb.cx/InstagramCNBC Follow CNBC News on Facebook: https://cnb.cx/LikeCNBC Follow CNBC on Threads: https://cnb.cx/threads Follow CNBC News on X: https://cnb.cx/FollowCNBC Follow CNBC on WhatsApp: https://cnb.cx/WhatsAppCNBC https://www.cnbc.com/select/best-cred... #CNBC #CNBCTV