What is love when living with Dravet Syndrome?

Families like Etta’s plan every hour around seizures. An emergency bag by the door. Medication alarms punctuating the day. Trips mapped by the nearest hospital. Nights are the hardest - waiting, listening, worrying. This is the devastating reality for many families who are living with Dravet Syndrome - a rare, life-long and life limiting neurological condition which affects one in every 15,0000 babies in the UK. Today we're calling on you to support our 'Love is' campaign and give hope a helping hand by making a regular donation to our charity. Head to www.dravet.org.uk/donate to sign up as a regular donor or to give a one-off donation in support of our 'Love is' campaign. Please join us in sharing this campaign far and wide so that more people can understand the reality of living with Dravet Syndrome and the impact of the support we provide.