A parent's impossible choice: saving siblings with rare Sanfilippo syndrome | 60 Minutes Australia

Subscribe here: http://9Soci.al/chmP50wA97J Full Episodes here http://9Soci.al/sImy50wNiXL | Parent power (2014) A parent's love knows no bounds, especially when a child is diagnosed with a deadly disease. But what lengths would you go to if the disease was so rare that pharmaceutical companies saw no profit in developing a cure? Well, more and more parents of desperately sick kids are taking matters into their own hands. Armed with passion and the power of the internet, they're bringing urgency to the usually glacial pace of drug discovery. Michael Usher talks to one Australian couple whose son and daughter have developed an ultra-rare fatal genetic disease. They've found a cure and established a medical trial, only to face the impossible decision - which child will they save? WATCH more of 60 Minutes Australia: https://www.60minutes.com.au LIKE 60 Minutes Australia on Facebook:   / 60minutes9   FOLLOW 60 Minutes Australia on Twitter:   / 60mins   FOLLOW 60 Minutes Australia on Instagram:   / 60minutes9   For forty years, 60 Minutes have been telling Australians the world’s greatest stories. Tales that changed history, our nation and our lives. Reporters Liz Hayes, Allison Langdon, Tara Brown, Charles Wooley, Liam Bartlett and Sarah Abo look past the headlines because there is always a bigger picture. Sundays are for 60 Minutes. #60MinutesAustralia

Australian parents abandon surrogate child with Down Syndrome | 60 Minutes Australia
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Australian parents abandon surrogate child with Down Syndrome | 60 Minutes Australia

Facing Growth Decisions Together - The Real Thumbelina - Documentary
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Facing Growth Decisions Together - The Real Thumbelina - Documentary

Teen Battling Sanfilippo Syndrome, aka ‘Childhood Alzheimer's’
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Teen Battling Sanfilippo Syndrome, aka ‘Childhood Alzheimer's’

Rare Sisters: Beyond Batten Disease
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Rare Sisters: Beyond Batten Disease

The Silent Child | Oscar® Winning Short Film
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The Silent Child | Oscar® Winning Short Film

Terrifying genetic disease causes entire families to never sleep again | 60 Minutes Australia
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Terrifying genetic disease causes entire families to never sleep again | 60 Minutes Australia

Cruel secret experiment separates twins and triplets at birth | 60 Minutes Australia
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Cruel secret experiment separates twins and triplets at birth | 60 Minutes Australia

'The Story I Never Thought I Would Tell': Becky Quick Talks About Child's Rare Disease
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'The Story I Never Thought I Would Tell': Becky Quick Talks About Child's Rare Disease

Sanfilippo's syndrome is complicated, helping is easy
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Sanfilippo's syndrome is complicated, helping is easy

Inside the corrupted world of commercial surrogacy | 60 Minutes Australia
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Inside the corrupted world of commercial surrogacy | 60 Minutes Australia

Surprised by Five: Naturally conceived quintuplets! | 60 Minutes Australia
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Surprised by Five: Naturally conceived quintuplets! | 60 Minutes Australia

Living with Wolf-Hirschhorn Syndrome: Zoe’s Story
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Living with Wolf-Hirschhorn Syndrome: Zoe’s Story

Tori's Triumph - A Documentary
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Tori's Triumph - A Documentary

Childhood dementia claiming young lives | A Current Affair
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Childhood dementia claiming young lives | A Current Affair

7 Year-Old's Muscles Turn to Bone: How Luciana Overcame FOP (Rare Disease Documentary)
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7 Year-Old's Muscles Turn to Bone: How Luciana Overcame FOP (Rare Disease Documentary)

After caring for her disabled son for 45 years, Deirdre fears what’s next | Australian Story
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After caring for her disabled son for 45 years, Deirdre fears what’s next | Australian Story

A Child with Dementia and her Loving Sister
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A Child with Dementia and her Loving Sister

Conjoined twins share taste, sight, feelings and thoughts | 60 Minutes Australia
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Conjoined twins share taste, sight, feelings and thoughts | 60 Minutes Australia

Adopted at Birth: A Dwarf Finds Her Real Family
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Adopted at Birth: A Dwarf Finds Her Real Family

What happens when children switched at birth aren't swapped back? | 60 Minutes Australia
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What happens when children switched at birth aren't swapped back? | 60 Minutes Australia