Living with Childhood Dementia (Sanfilippo Syndrome): Sadie's Story
Sadie has been diagnosed with Sanfilippo syndrome type A, a rare genetic condition often described as a form of childhood dementia. It gradually robs children of basic abilities like walking, speaking, and eating. Because most children with Sanfilippo live only to about their mid-teens, Sadie’s family has chosen to focus on filling her life with as many joyful memories as they can. Help cure Sanfilippo syndrome at: https://give.curesanfilippofoundation... Connect with Sadie's Family at: https://www.savingsadierae.org/ / savingsadierae

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Living with Childhood Dementia (Sanfilippo Syndrome)

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