Vici Syndrome: Emmy's story | Action Medical Research

Emmy has Vici syndrome, a very rare and life-limiting genetic disorder. Sadly, there is currently no cure or effective treatment and most affected children lose their lives at a very young age. Action Medical Research is funding research to better understand and target the cellular processes that go wrong in Vici syndrome – and to test existing drugs that could help. Read Emmy's Story: https://action.org.uk/research/family... ---- http://www.action.org.uk   / actionmedres     / actionmedres