Compensation, with Zal Press and Dawn P. Richards
How to compensate patient partners, and under what circumstances, has long been a topic of debate among patient partners, researchers, and engagement professionals. Join us as we speak with Zal Press and Dawn P. Richards, co-authors (with Isabel Jordan and Kimberly Strain) of "Patient partner compensation in research and health care: the patient perspective on why and how (https://pxjournal.org/journal/vol5/is...) ." They share their experiences and perspectives as long-time patient partners on both organizational committees and health research projects. In this fascinating exploration with Zal and Dawn, we talk through some big ideas: patients conceptualized as part of the healthcare workforce; the historical roots of healthcare as a faith-based charitable enterprise; how patient partners are shouldering the burden for having awkward conversations about compensation; that compensation doesn't fix communication issues... and so much more! [download transcript (https://mattersofengagement.com/wp-co...) ] Mentioned in this episode: • Patient partner compensation in research and health care: the patient perspective on why and how, Richards et al (https://pxjournal.org/journal/vol5/is...) • Medieval Healthcare and the Rise of Charitable Institutions: The History of the Municipal Hospital, by Tiffany A. Ziegler (https://www.palgrave.com/gp/book/9783...) • Rethinking the patient: using Burden of Treatment Theory to understand the changing dynamics of illness, May et al (https://bmchealthservres.biomedcentra...) • Understanding the motivations of patients: A co‐designed project to understand the factors behind patient engagement, McCarron et al (https://www.ncbi.nlm.nih.gov/pmc/arti...) Zal Press (Patient Commando) on Twitter ( / patientcommando ) Dawn P. Richards on Twitter ( / to_dpr )

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