How Hugo Campos Built the Healthcare Tools the System Never Gave Him

This week on Pulse: Amplify, Louise and George sit down with patient advocate and AI Champion, Hugo Campos. Hugo Campos has spent nearly two decades fighting for a simple principle: patients should have access to the data generated by their own bodies. After discovering that his implanted cardiac defibrillator was sending information to clinicians and manufacturers—but not to him—he became one of the world's leading advocates for patient data rights. In this episode, Hugo explains why generative AI changes everything. Rather than waiting for hospitals or vendors to build better tools, patients can now create their own AI-powered applications, analyse their own health data and ask questions that matter to them. We discuss patient-directed AI, the rise of personalised "N-of-1" healthcare, critical AI health literacy, and why the next wave of healthcare innovation may come from patients themselves—not institutions. Connect with Hugo on LinkedIn ( https://www.linkedin.com/in/hugocampos/ ) Resources – open source, freely available by Hugo:https://caihl.org/ ( https://caihl.org/ ) (framework of critical ai health literacy)https://openkp.org/ ( https://openkp.org/ ) (mcp server for access to provider data)https://myheartdata.org/ ( https://myheartdata.org/ ) (19 years of Hugo’s own echo data)https://hugotronic.com/ ( https://hugotronic.com/ ) (longitudinal data from Hugo’s implantable defibrillator)https://endothelial.org/ ( https://endothelial.org/ ) (explains endothelial dysfunction, built for Dave) Hugo’s newest app:https://hugoscore.org/ ( https://hugoscore.org/ ) (evaluates patient-facing health apps throught he CAIHL lens) Visit Pulse+IT.news ( https://www.pulseit.news/ ) to subscribe to breaking digital news, weekly newsletters and a rich treasure trove of archival material. People in the know, get their news from Pulse+IT – Your leading voice in digital health news. Follow us on LinkedIn Louise ( https://www.linkedin.com/in/louiseschaper/ ) | George ( https://www.linkedin.com/in/drgeorgemargelis/ ) | Pulse+IT ( https://www.linkedin.com/company/pulseitnews/ )Follow us on BlueSky Louise ( https://bsky.app/profile/drlouiseschaper.b... ) | George ( https://bsky.app/profile/drgeorgemargelis.... ) | Pulse+IT ( https://bsky.app/profile/pulseit.bsky.social )Send us your questions [email protected] ( [email protected] )Production by Octopod Productions ( https://octopod.productions/ ) | Ivan Juric ( https://www.linkedin.com/in/ivan-juric-oct... ) PULSE Episode 76 July 9, 2026 ★ Episode details: https://share.transistor.fm/s/cba4e9f3 ★ Additional episodes: https://www.pulseit.news/pulsepod/