Life with Rami: A Journey with Cerebro-costo-mandibular syndrome (CCMS) | Cincinnati Children's

Join Ali and Audrey Kandil as they share the heartwarming and challenging journey of their son, Rami, who was born with a rare genetic disorder called Cerebro-costo-mandibular syndrome (CCMS). The video highlights their experiences with Cincinnati Children's Hospital, where a team of dedicated specialists provided comprehensive care that saved Rami's life. From Rami's unique birth circumstances to the incredible support from medical professionals and the emotional milestones in his development, this touching story underscores the importance of advanced medical care and familial love. 00:00 Introduction to Rami's Story 00:09 Rami's Rare Genetic Disorder 00:44 Meet the Kandil Family 00:50 Challenges and Medical Interventions 01:43 The Role of Cincinnati Children's Hospital 02:51 Connecting with Other Families 03:18 A Personal Connection with a Genetics Fellow 04:19 Rami's Progress and Milestones 05:26 Reflections and Gratitude ________________________________________________________________________ Connect with us! Instagram:   / cincychildrens   Facebook:   / cincinnatichildrensfans   LinkedIn:   / cincinnatichildrens   X: https://x.com/CincyChildrens ________________________________________________________________________ Young & Healthy Podcast: https://youngandhealthy.podbean.com/ Patients & Family Blog: https://blog.cincinnatichildrens.org/ Research & Science Blog: https://scienceblog.cincinnatichildre...