NACFC 2025 | S17: Early Diagnosis vs. Late Diagnosis: Compare & Contrast

This session explores real-world case studies highlighting adolescent and adult cystic fibrosis diagnoses, CRMS conversion, and powerful insights from a patient’s personal journey. Presenters showcase two distinct program approaches: 1. An individualized stepwise strategy to support patients and families through new diagnoses 2. A patient advisory board-driven initiative focused on quality improvement to enhance education and outreach following newborn screening. Originally recorded Oct. 24, 2025. Recording may have been edited for time and/or content.