25 Years With Multiple Myeloma: Michael & Robin Tuohy’s Journey of Hope and Resilience

For over 25 years, Michael and Robin Tuohy have faced multiple myeloma together — as patient and care partner, husband and wife, advocates and leaders in the International Myeloma Foundation (IMF) community. In this heartfelt conversation, they share their journey from diagnosis and treatment to finding purpose in helping others through support groups and advocacy. Whether you’re newly diagnosed or a long-time survivor, this video offers comfort, wisdom, and hope from two people who’ve lived the reality of life with myeloma for decades. Topics covered in this video: 0:00 - Introductions: Michael and Robin’s 25-year journey 0:26 - Early symptoms — back pain and diagnosis 1:33 - The emotional impact of hearing “multiple myeloma” 2:00 - Talking to children about myeloma in age-appropriate ways 3:34 - Realizing the power of community and advocacy 5:00 - Founding the first Connecticut support group 6:07 - Faith, resilience, and the IMF’s impact 7:48 - Finding joy during treatment (ice cream stories & Red Sox game) 9:08 - Helping kids understand treatment and hair loss 10:00 - The power of friendship, community, and remembrance 11:56 - The birth of the IMF “faMMily” and SGLS community 13:42 - Living with, not for, myeloma 14:32 - How the IMF support group network grew from 30 to 150+ 16:03 - Navigating finances and family during tough times 17:34 - Lessons in gratitude and community 18:38 - Reflection and advice 19:36 - What are the Tuohys most proud of? Have a question that needs more personalized support? Call us! We’re here for you. The IMF’s InfoLine is available to answer your myeloma-related questions and concerns. Call us at 1-818-487-7455, email us at [email protected], or schedule your call at a time that works best for you at: https://www.myeloma.org/infoline. _______________ Improving Lives | Finding the Cure Founded in 1990, the International Myeloma Foundation (IMF) is the first and largest organization focusing specifically on multiple myeloma. The IMF’s reach extends to more than 525,000 members in 140 countries worldwide. The IMF is dedicated to improving the quality of lives of myeloma patients while working toward prevention and a cure through our four founding principles: Research, Education, Support, and Advocacy. Subscribe to our channel:    / imfmyeloma   Visit our website at: https://www.myeloma.org Find us online: Facebook: @myeloma |   / myeloma   X/Twitter: @IMFMyeloma |   / imfmyeloma   Instagram: @imfmyeloma |   / imfmyeloma   LinkedIn:   / international-myeloma-foundation   Support the IMF | Donate Now! https://fundraise.myeloma.org/give/52... Category Nonprofits & Activism License Standard YouTube License The International Myeloma Foundation is committed to accessibility for all. That’s why all English-language videos uploaded to our YouTube channel feature human-transcribed closed captioning. This ensures more accurate captions for viewers who are Deaf or hard of hearing and improves the quality of automatic translations into other languages for our global audience.