Chronic Pain is Hard to Explain 👑🐷 Pirate Radio EP 2

Saily, the pain-free eSIM. Use code KINGKOGI gets you 15% off at checkout https://saily.com/kingkogi Welcome back to King Kogi Pirate Radio. In this episode we’re diving deep into the reality of living with chronic pain. From navigating medical systems across the globe to the daily battle of "brain pain," we discuss why it’s so difficult to explain these experiences to others. We also share actionable tips for building your own "Emergency Toolkit" and exploring the "Build A Ladder" mindset. Whether you're living with a chronic condition or supporting someone who is, we hope this conversation brings some vindication, comfort, and a understanding for your journey. Please let us know if you found any part of the podcast particularly helpful by adding the timestamp to your comment so we can make create shorter sections to share easily. ｡･:*:･ﾟ★,｡･:*:･ﾟ☆　👑🐷　 ｡･:*:･ﾟ★,｡･:*:･ﾟ☆ ★ Travel Guides: https://www.kingkogi.ca/travel-guide-... ☆ Support the Airship: A huge thank you to our channel members on YouTube and Patreon for keeping this channel independent. YouTube Membership:    / @kingkogi   Patreon Membership:   / kingkogi   ★ Click to enjoy more King Kogi videos:    • All Videos 👑🐷   ★Visit me on   / king.kogi   and TikTok   / king_kogi   ｡･:*:･ﾟ★,｡･:*:･ﾟ☆　👑🐷　 ｡･:*:･ﾟ★,｡･:*:･ﾟ☆ For fellow EDS folks, here is a link to ‪@JeannieDiBonHypermobility‬ who has helpful videos and tips    / @jeanniedibonhypermobility   Podcast Chapters 00:00 - Welcome to King Kogi Pirate Radio 00:30 - Why call it a "Wellness Podcast"? 01:30 - Living with an invisible illness (hEDS) 02:10 - A partner's perspective on chronic pain 03:30 - Community stories and common threads 05:15 - Hairdresser tips: Lessons in accessibility 06:10 - Just a simple ad read 08:15 - Navigating the medical system and doctors 10:30 - "Normie" perspective vs. chronic pain reality 11:45 - The diagnostic journey Canada, Korea, and Japan 14:10 - The search for the right physiotherapist 15:30 - When medication isn't enough: The mental side of pain 19:10 - The danger of gaslighting yourself 21:15 - Taking charge of your own treatment 24:00 - The difficulty of explaining pain to others 27:00 - Why we don't need "cures" 29:00 - How to support someone in pain 31:00 - The guilt and shame of asking for help 33:30 - Managing energy and choosing your battles 34:30 - The Emergency Toolkit: Preparing for the flares 40:30 - "Push it to the limit" vs. recovery time 42:45 - The mind-body connection: Understanding "Brain Pain" 45:00 - Learning to read the warning signs 49:30 - Managing tomorrow by looking after today 53:00 - Travel planning: Preparing for the worst-case scenario 58:00 - Build A Ladder: Finding wonder in the small things 01:04:45 - Breaking the people-pleasing cycle 01:06:40 - A message to the King Kogi Village ｡･:*:･ﾟ★,｡･:*:･ﾟ☆　👑🐷　 ｡･:*:･ﾟ★,｡･:*:･ﾟ☆ #chronicillness #invisibleillness #chronicpain #ehlersdanlossyndrome #chronicpainsolutions #kingkogi #buildaladder