Guidelines for the Management of Acute Porphyria- Webinar Recording
Join porphyria experts Manisha Balwani, MD, MS of Mount Sinai and Hetanshi Naik, PhD of Stanford University for a conversation about the new acute porphyria guidelines and what patients and families should know. Patient-friendly summary of guidelines: https://www.porphyria.org/features/su... 00:00 Welcome and Introductions 1:09 Guidelines Creation 6:24 Managing Triggers 7:10 Drug Safety 8:38 Alcohol and Smoking 10:00 Weight Loss 11:20 Contraception 12:28 Treating Acute Attacks 17:34 Recurrent Attacks 23:39 Doctor Appointments 26:13 Liver Cancer Screening 27:28 Genetic Testing 28:35 Q&A
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