Sclerodermia: 4 storie di vita tra coraggio e quotidianità

In this video, Alessandra, Barbara, Claudia, and Patrizia share their experience with scleroderma (progressive systemic sclerosis). Interviewed by journalist Antonella De Minico at the Rheumatology Department of the Modena Polyclinic, the four women offer an unfiltered account: from the first signs of the disease to the management of ulcers, up to the repercussions on their social, emotional, and intimate lives. The video was screened at the Emilia-Romagna Regional Conference dedicated to World Rare Disease Day. Daniele Conti (AMRER): Patients' voices and needs in the treatment journey. AMRER's goal is to transform individual experiences into a collective force to improve care and the quality of life of all patients. 📌 Subscribe to the channel to stay updated on AMRER's activities in support of rheumatic patients. 🔗 Visit our website: www.amrer.it