CF FamilyCon 2022 | Nutrition Across the Lifespan: The Ebb and Flow of CF Nutritional Needs

The changing needs of nutrition are nothing new if you live with or love someone with cystic fibrosis. From g-tubes to transplant to starting a CFTR modulator, there are many phases of CF life that may change the way you or your loved one eats. Join panelists Shelby Luebbert and Trey Wehrum, adults with CF, Katie McDonald, an adult and pediatric CF dietician, as well as Danielle Driggers, an aunt to a person with CF, as they discuss the changing nutritional habits that span across the lifespan of those with CF. 0:00 | Nutrition Across the Lifespan 03:44 | Sensitivities and challenges of discussing nutrition 04:37 | Shelby Luebbert shares her CF and nutrition journey 07:13 | Pillars of CF care and components of nutritional health 11:43 | The role of CF clinic dietitians and advocating for systemwide change 15:17 | People with CF are balancing many plates 16:55 | Danielle Driggers shares her nephew’s CF and nutrition journey 21:56 | The hunger scale and principles of intuitive eating 25:47 | Recommendations for a balanced meal 27:34 | Shelby Luebbert shares her story of patient advocacy and food journaling 33:18 | Myths about a dietitian’s role and expertise debunked 38:06 | Trey Wehrum’s shares his journey with organ transplant 43:00 | What are some tips and tricks for a child with CF who refuses to eat? 51:35 | What are the signs that you should reduce gluten in your diet? 55:15 | Are people with CF more likely to develop sensitivities to dairy or have food allergies in general? 59:33 | Are things like canola oil bad for you compared to olive oil? 1:00:36 | Thank you for joining Originally recorded October 22, 2022.