Conor’s Breathing Got Worse… So We Did This Test
Conor’s breathing has been feeling more labored lately, so before work we headed to the hospital for a full Pulmonary Function Test (PFT). If you’re new here, Conor has Spinal Muscular Atrophy (SMA), and breathing strength/positioning can play a huge role in day-to-day life. In this video we talk about: • What a pulmonary function test actually is • Why wheelchair seating matters more than people realize • Everysdi and maintaining baseline function • The reality of navigating wheelchair care in the U.S. Thankfully, the results were stable… but this experience reminded us how much accessibility and proper equipment can impact quality of life. Have you ever had a PFT before? Or dealt with seating/positioning issues in a wheelchair? Let us know in the comments below. ❤️ Thanks for being here and supporting our interabled couple journey. #SMA #InterabledCouple #DisabilityAwareness #WheelchairLife #PulmonaryFunctionTest #Everysdi #spinalmuscularatrophy 00:00:27 – Why we’re at the hospital before work 00:01:03 – What is a Pulmonary Function Test (PFT)? 00:02:20 – Marisa helping create a seal during testing 00:04:00 – Did Conor fail the test? 00:04:35 – Everysdi & maintaining baseline function 00:05:45 – Busy schedules & reduced recovery time 00:06:35 – Upcoming wheelchair seating evaluation 00:08:12 – Free PFT nose clamps 😂

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