Do patients and providers see indolent systemic mastocytosis (ISM) the same way?

In this episode of The Itch Review, we dive into the study “Patient and Advanced Practitioner Perspectives on Symptom Burden and Symptom Management in Indolent Systemic Mastocytosis,” published in The Journal of the Advanced Practitioner in Oncology (May 2025). The findings reveal a disconnect between how patients experience ISM symptoms and how advanced practice providers (APPs) perceive them. Key takeaways from this episode: What is ISM and symptom burden? The Symptom Burden Gap: Only 24% of patients felt their ISM was well-controlled, while 76% of APPs believed their patients were doing well. What Patients Report Most: Fatigue, brain fog, and diarrhea topped the list of symptoms impacting quality of life, but weren’t always seen as top concerns by providers. Tracking Trouble: Tools like the ISM-SAF exist to measure symptoms, but most clinics don’t use them regularly or effectively. Mismatched Perspectives: Patients and APPs often don’t agree on which symptoms are most severe or hardest to manage. Thanks to Blueprint Medicines for sponsoring today’s episode. This podcast is for informational purposes only and does not substitute professional medical advice. Always consult with your healthcare provider for any medical concerns. Allergy, Asthma & Immunology Innovations Podcast Allergy & Asthma Network partners with The Itch Podcast to produce podcast episodes and series covering a wide range of subjects related to asthma, allergies, immunology and eczema. Join Payel Gupta, MD and Kortney as they dive into the complexities of medical diagnosis, offering balanced episodes with both medical and patient perspectives to help you live a healthier life. More from the Allergy & Asthma Network: More Allergy, Asthma & Immunology Innovations Podcast episodes: https://allergyasthmanetwork.org/podc... Latest news articles: https://allergyasthmanetwork.org/news/ Asthma content: https://allergyasthmanetwork.org/what... Allergy content: https://allergyasthmanetwork.org/alle... Eczema content: https://allergyasthmanetwork.org/what... Anaphylaxis content: https://allergyasthmanetwork.org/anap... Related conditions: https://allergyasthmanetwork.org/heal...