Finding Trusted Information: Navigating the Neuroblastoma Journey
This session brings together parent and clinical perspectives on how families access information about neuroblastoma: (01:50) Donna Ludwinski discusses the importance and challenges of finding trusted, evidence-based sources of information on neuroblastoma, and provide tips on avoiding common pitfalls. (16:13) Parent advocate Mandy Berriman shares her reflections on the sources of information she relied on throughout her child’s treatment. (29:47) Dr Ramya Ramanujachar outlines the role of the National Neuroblastoma Advisory Panel in the UK, including how it brings together expertise to discuss and advise on complex cases. (53:50) Questions and answers
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