Wild Grass of Hope - Neurofibromatosis Shenzhen Care Center (NFCC)

"I chose to walk out of the darkness to save myself…Gradually, I realized I was no longer afraid to face life." — Wang Fang The Children's Tumor Foundation (CTF) is pleased to share Wild Grass of Hope, a powerful short documentary created by our friends at the Neurofibromatosis Shenzhen Care Center (NFCC) in China. NF is global — and so is our work to end it. CTF’s commitment is to end all forms of NF, everywhere. Our role goes beyond any one country, clinic, lab, or trial. We are actively building a connected global NF ecosystem, one that moves trusted information, scientific knowledge, patient experience, clinical insight, and treatment opportunities across borders faster and more effectively than ever before. NFCC’s Wild Grass of Hope is a beautiful portrait of one woman’s life with NF1, and we are proud to share it through our global network. The film tells the story of Wang Fang, a woman living with NF1 who found community through the NF Support Center and became an advocate for others facing NF and rare diseases in China. Her story is a powerful reminder of why trusted information, accurate diagnosis, community, and scientific progress all matter. For families anywhere in the world facing NF, answers can change everything — and connection can help turn isolation into action. NF affects approximately 1 in 2,000 people worldwide, including in China. For individuals, clinicians, researchers, or organizations looking to connect with NF resources in China, CTF can help connect you. Reach us at [email protected] Be sure to subscribe (and click the bell!) to receive alerts when we post a new video: https://www.youtube.com/user/ctforg?s... About NFCC: Neurofibromatosis Shenzhen Care Center (NFCC) is a non-profit organization founded in 2019 to support the estimated 600,000 individuals living with NF disorders in China. With over 20,000 patients and families in their network, they provide care navigation, community support, and promote equitable access to scientific, continuous treatment for NF. About CTF: The Children’s Tumor Foundation (CTF) is the drug discovery engine for NF. Everything we do is to bring treatments to patients as we work toward a cure. By connecting patients, doctors, scientists, and pharma, we drive treatments, advance care, and deliver results for millions affected by neurofibromatosis or schwannomatosis, collectively referred to as NF. Our patient-first collaborative approach accelerates drug development and brings life-changing therapies to patients faster, driven by our mission to end NF. What is NF? NF refers to a group of genetic conditions that cause tumors to grow on nerves throughout the body. NF affects 1 in 2,000 births and may lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, or cancer. NF affects all races, ethnic groups, and genders equally. The types of NF include neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2 (NF2). Visit our website at https://www.ctf.org/ Donate today at https://www.ctf.org/ways-to-give/ Follow us on our social media platforms: Facebook -   / childrenstumor   Instagram -   / childrenstumor   X -   / childrenstumor   LinkedIn -   / children's-tumor-foundation   TikTok -   / childrenstumor   #endnf #nf1 #nf2 #nf2swn #swn #childrenstumor #neurofibromatosis #schwannomatosis #nervetumor #tumor #health #medical #clinic #patient #diagnosis