MANAGING MY ARACHNOIDITIS : How I manage my daily symptoms
This video is an update on my arachnoiditis/ mild adhesive arachnoiditis (AA) and how I manage to ongoing daily symptoms. I have not had a major flare in over a year but I do have many ongoing daily symptoms I have to micro-manage throughout the day to get the most out of my time. Here is a breakdown of content you can skip to: 0:00 Intro 0:28 Seven years of arachnoiditis/ mild AA 1:16 Current medication 1:57 Vitamins/ supplements/ diet 2:08 Walking physio 2:32 When people ask: How are you doing? 4:09 What does it feel like to have arachnoiditis/AA/ Spinal CSF Leak (active or in recovery)? 5:18 How did my fall cause arachnoiditis? 6:49 What does the arachnoiditis pain feel like? 9:49 CSF/ Spinal fluid flow issues 11:24 Standing is normally a better position for me 12:46 Higher Intracranial pressure (ICP) issues/ symptoms - common to those with arachnoiditis/ tarlov cysts and post spinal CSF leak 15:02 Problems with focus & concentration 18:33 How about driving a car? 19:07 Do I ever feel normal? 21:09 Do I have fears for the future? For the full summary of my medical history and footage of my January 2021 arachnoiditis flare see this 5 min video: • MY SPINAL CSF LEAK & ARACHNOIDITIS STORY: ... To read more about my arachnoiditis diagnosis in July 2020 and journey since then see: https://beckyhillblog.com/category/ar... To view my Jan/ Feb 2021 arachnoiditis flare playlist including symptoms see: • Arachnoiditis Flare January 2021 Twitter: Beckyhill3 #Arachnoiditis #Adhesivearachnoiditis #SpinalCsfLeak #CSFleak #TarlovCysts #SIH UK CSF LEAK CHARITY: https://www.csfleak.info/ US CSF LEAK CHARITY: https://spinalcsfleak.org/ SPINAL CSF LEAKS: Clinical Presentation, Investigation Findings, and Treatment Outcomes of Spontaneous Intracranial Hypotension Syndrome (NHNN authors): https://jamanetwork.com/journals/jama... ARACHNOIDITIS: ‘Arachnoiditis – Taming the Most Painful Pain’ Dr Forest Tennant video • Arachnoiditis—Taming the Most Painful Pain ARACHNOIDITIS: Suspecting & Diagnosing Arachnoiditis (J. Antonio Aldrete) https://www.practicalpainmanagement.c... IV STEROID TREATMENT: A medical paper supporting the use of steroids in treating early stage arachnoiditis and in the prevention of further adhesive arachnoiditis: Immunotherapies in chronic adhesive arachnoiditis – A case series and literature review https://www.sciencedirect.com/science... And another case where IV methlyprednisolone was successfully used: Idiopathic Arachnoiditis of the Cauda Equina: A Case Report from Tanzania https://www.karger.com/Article/FullTe...

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