ARACHNOIDITIS RELAPSE AUGUST 2023 WITH ACUTE LOW PRESSURE HEADACHE FLARE - What is the connection?

This video documents my recent arachnoiditis/ adhesive arachnoiditis flare in August 2023. During this video I also consider the question as to why my low pressure headache/ spinal csf leak symptoms get equally acute during the flare. How does the increase in the inflammation and the physiological mechanisms at play cause me to revert to such distinct Spinal CSF leak symptoms? As has always been the case in my medical history over the past 8 1/2 years since a ladder fall in January 2015. Recovery update short (1 min) from 2 weeks post IV is here:    • August 2023 relapse recovery update 8th Se...   I was diagnosed with a suspected #spinalcsfleak in February 2015 - although it took another 4 years to see evidence of a leak on my MRI. I was then diagnosed with arachnoiditis in July 2020 - 5 years later. Although I truly believe that the arachnoiditis has been there from the start because each relapse takes on the same pattern as my first deterioration, the first week following my accident. Everything I discuss in my videos is based on personal experience, years of symptom observations, plus my own research and listening to others stories. My experiences are unique and thus uniquely managed by my two neurology teams and two different Midlands UK NHS hospitals. So I cannot comment or offer any medical explanations, advice or diagnosis to others. I only share my own story in the hope that it may help others on their unique journeys to more answers. 0:00 Into 0:12 Relapse intro 1:06 Post flare recap 1:52 WHY DO MY SPINAL CSF LEAK/ LOW PRESSURE SYMPTOMS GET SO MUCH WORSE DURING MY ARACHNOIDITIS RELAPSES? 2:00 Low pressure/ spinal CSF leak symptoms 3:48 Explaining my acute low pressure symptoms during relapse 5:56 Taking 40mg oral prednisolone (steroid) 6:06 My legs are not working properly 6:50 Relapse cause/ triggers: car travel then jolting spine 11:38 Follow up call with Neurologist 13:40 IV Methylprednisolone 1g IV x3 days on GPAU 14:44 Do high dose steroids increase ICP? 16:40 2 week prednisolone taper from 30mg to 5mg every other day normal dose 18:42 Can you relate? Do you get similar symptoms? Please do comment or reply. For the full summary of my medical history including ladder fall in January 2015, spinal CSF leak diagnosis and footage of my January 2021 arachnoiditis flare see this 5 min video:    • MY SPINAL CSF LEAK & ARACHNOIDITIS STORY: ...   To read more about my arachnoiditis diagnosis in July 2020 and journey since then see: https://beckyhillblog.com/category/ar... To view my Jan/ Feb 2021 arachnoiditis flare playlist including symptoms see:    • Arachnoiditis Flare January 2021   Twitter: Beckyhill3 #Arachnoiditis #Adhesivearachnoiditis #SpinalCsfLeak #CSFleak #SIH #lowpressureheacdaches #highpressureheadaches #highICP #LowICP UK CSF LEAK CHARITY: https://www.csfleak.info/ US CSF LEAK CHARITY: https://spinalcsfleak.org/ SPINAL CSF LEAKS: Clinical Presentation, Investigation Findings, and Treatment Outcomes of Spontaneous Intracranial Hypotension Syndrome (NHNN authors): https://jamanetwork.com/journals/jama... ARACHNOIDITIS: ‘Arachnoiditis – Taming the Most Painful Pain’ Dr Forest Tennant video    • Arachnoiditis—Taming the Most Painful Pain   and ‘Arachnoiditis No Longer A Rare Disease’ https://www.practicalpainmanagement.c... ARACHNOIDITIS: Suspecting & Diagnosing Arachnoiditis (J. Antonio Aldrete) https://www.practicalpainmanagement.c... IV STEROID TREATMENT PAPERS: Dr J. Antonio Aldrete also co-authored a comprehensive medical book called ‘ARACHNOIDITIS THE EVIDENCE REVEALED’ with a whole chapter (51) dedicated to the study of using IV Methylprednisolone in the acute stages of Arachnoiditis/ Adhesive Arachnoiditis to prevent further progression and damage. Another medical paper supporting the use of steroids in treating early stage arachnoiditis: Immunotherapies in chronic adhesive arachnoiditis – A case series and literature review https://www.sciencedirect.com/science... And another case where IV methlyprednisolone was successfully used: Idiopathic Arachnoiditis of the Cauda Equina: A Case Report from Tanzania https://www.karger.com/Article/FullTe...