VLC 2026 | Cystic Fibrosis Experience Panel: CF Is More Than CF

Cystic fibrosis impacts more than just your lungs. Your entire body, your mental health, your family, your future — nothing is off the table. In this candid panel, adults with CF share the everyday realities people may not expect, and how they choose to show up for themselves and for the community. Originally recorded March 21, 2026. 00:00 | 2026 Volunteer Leadership Conference CF Experience Panel 00:40 | Randell Gans, adult with CF, introduction 03:13 | Scott Dabenne, adult with CF, introduction 04:52 | Chyann Hoyle, adult with CF, introduction 06:20 | How has CF impacted you more than beyond your lungs? 11:30 | What was it like to grow up with a sister who also had CF? 13:30 | How has your mental load shifted overtime? 21:15 | How important is a support system? 25:24 | What were some of the challenges you experienced during family planning? 32:17 | How has self-advocacy shaped your experience of giving back? 39:02 | What was your experience participating in a clinical trial? 44:00 | Final thoughts