Fighting Lupus & Ehlers Danlos Syndrome// There is no control// Chronic Illness Warrior
✨Here’s a little about me: 👉 I have been on this journey for several years. Although it took me a year to start realizing this was beyond my scope of care. I always hated Doctors, hospitals, & meds. When I finally sought help it took too long to get proper treatments and I went into a huge unforgiving flare that lasted at least two years. 🌟My formal diagnosis is Ehlers Danlos Syndrome (hEDS) w an overlay of Lupus. I also have the cormorbidies like PoTs, IBS, Fibro, Anxiety, and suspected MCAS (Phew, that was a mouthful). To sum me up: ✨ 🧿 I am cautiously optimistic, refusing to give in, but realistic in my approach. While documenting my journey💜 ✨Let’s be friends!! 🌙I am on Insta: @_itscrazywonderful / _itscrazywonderful 🌟Twitter: @_crazywonderful / _crazywonderful 👉YouTube: Crazy Wonderful / @crazywonderful Blog: https://medium.com › @ItsCrazyWo...Crazy Wonderful - Medium Email: [email protected] 🧿🤍 #selflovejourney . . . #chronicillness #chronicpain #chronicallyill #invisibledisability #invisibleillness #spoonie #spoonielife #lupus #lupuswarrior #ehlersdanlossyndrome #edsawareness #ehlersdanlos #jointhypermobilitysyndrome #fibromyalgia #fibro #potssyndrome #mcas #motivation #disabled #keepgoing #pots #mentalhealthmatters #mentalhealth #anxiety #autoimmunedisease #autoimmunewarrior #inspiration #lupusawareness #depression #vlog
Lupus & Ehlers Danlos- Starting Over: Diagnosis Journey // Spoonie Flare
Ehlers Danlos Syndrome-How I Got Diagnosed
My Benzo & Antidepressant Harm Story
The Documentary Every Person With M.E/CFS Should Watch
I’m in a Flare: An Honest Convo// Lupus & Ehler Danlos Syndrome Warrior
"good health" has become a competition
Kings College Lead Researcher Prof Andersson explains why his work proves Fibromyalgia is autoimmune
Why I was diagnosed with Classical Ehler's Danlos Syndrome
Psychiatrist Listens to Lindsay Clancy Insanity Defense
Dealing with a Lupus Flare? // Is it POTS? Ehlers Danlos? Fibro?// Living with Chronic Illness
Lupus & Ehlers Danlos: Diagnosis Journey (Mental Health)
Told Nothing's Wrong? Your Symptoms Might Be MCAS with Dr. Lawrence Afrin
I’m in a Flare: Lupus, EDS, mixed with POTS… This is What it’s Like// Living with Chronic Illness
NIH Scientists Scanned CFS Brains: Here's What It Means for Fibromyalgia
My VEDS Characteristics and Diagnosis Story (Vascular Ehlers-Danlos syndrome)
Major Gastrointestinal Flare// How I Manage// Living with Chronic Illness
My Lupus Journey| How I found out I have Lupus| living with a autoimmune disease!
Hypermobility Syndromes: The Hidden Pattern Behind 4 Separate Diagnoses.A chat with Dr John Campbell
Photographers Who Became Friends With Wildlife in the Sweetest Way! 😍🐾
