Lupus & Ehlers Danlos- Starting Over: Diagnosis Journey // Spoonie Flare
✨Here’s a little about me: 👉 I have been on this journey for several years. Although it took me a year to start realizing this was beyond my scope of care. I always hated Doctors, hospitals, & meds. When I finally sought help it took too long to get proper treatments and I went into a huge unforgiving flare that lasted at least two years. 🌟My formal diagnosis is Ehlers Danlos Syndrome (hEDS) w an overlay of Lupus. I also have the cormorbidies like PoTs, Gastrointestinal issues, Fibro, Anxiety, and suspected MCAS (Phew, that was a mouthful). To sum me up: ✨ 🧿 I am cautiously optimistic, refusing to give in, but realistic in my approach. While documenting my journey💜 ✨Let’s be friends!! Patreon https://www.patreon.com/cw/CrazyWonde... 🌙I am on Insta: @_itscrazywonderful / _itscrazywonderful Tik tok: https://www.tiktok.com/@_itscrazywond... 👉YouTube: Crazy Wonderful / @crazywonderful Blog: https://medium.com › @ItsCrazyWo...Crazy Wonderful - Medium Email: [email protected] 🧿🤍 #selflovejourney . . . #chronicillness #chronicpain #chronicallyill #invisibledisability #invisibleillness #spoonie #spoonielife #lupus #lupuswarrior #ehlersdanlossyndrome #edsawareness #ehlersdanlos #jointhypermobilitysyndrome #fibromyalgia #fibro #potssyndrome #mcas #motivation #mentalhealthmatters #mentalhealth #anxiety #… #autoimmunewarrior #inspiration #vlog #lifestyle #dailylife #weekinmylife #lifevlog
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