【第1話】膠原病・多発性筋炎｜“足”から始まった初期症状

When I was diagnosed with polymyositis, a rare autoimmune disease, my life completely changed. Hi, I’m Hana from Japan 🐰 This is my story of battling polymyositis — a rare autoimmune disease — and what treatment was like in a Japanese hospital. In this first episode, I share how I first encountered polymyositis and the path that led to my diagnosis. At the time, I was 27 and honestly didn’t fully understand what my doctor was telling me. It all felt like something happening to someone else. What I still remember clearly is what my doctor said during that first visit: “You did well to notice this and come here. You’re very smart.” It wasn’t just a compliment — it felt like a gentle way of helping me prepare for the difficult news that I might have a rare disease. Ten years ago, there was no ChatGPT or AI to help. I had to search everything on my own, trying hard to understand what was happening to my body. These days, people might find accurate information much faster thanks to technology. Even with the same illness, symptoms and treatment results can vary from person to person. Still, I hope my story brings a little comfort — whether you see it as a “patient story,” a “hospital moment,” or simply something that makes you smile 🌸 📘 Next Episode: “Life in the Hospital” – coming soon! Please subscribe and follow Hana’s recovery journey 🐇✨ 📺 Subscribe here →    / @usagihanavlog   🐰 Watch the playlist →    • 【多発性筋炎】うさぎのハナの回復ストーリー   #IllnessStory #Polymyositis #CollagenDisease #RareDisease #TrueStoryAnimation #HanaTheRabbit #AutoimmuneDisease #Japan #RecoveryJourney 🩺 This video is based on my personal experience with polymyositis. It is not intended as medical advice. Please consult a qualified doctor for any concerns about your health or treatment 🌿