Seltene Erkrankungen: Viele Betroffene und Detektivarbeit | Podcast Folge 8 [Prof. Grigull, UKB]

MedNight Video Podcast Episode 8 - This episode is all about rare diseases. Together with my guest today, Prof. Dr. Grigull, we discuss this very exciting and important topic in detail. These often overlooked and misunderstood diseases affect the lives of millions of people. They are often difficult to diagnose and treat, which can lead to a long ordeal with uncertainty and a long medical odyssey. Interview questions for this episode: 1. What are rare diseases? 2. How many: How many people are affected? 3. Rare diseases: Which rare diseases exist? Can they be clustered, and which are rare, and which are extremely rare? 4. Rarest disease: What is actually the rarest disease in the world? Have you ever had a patient like this? 5. Awareness: How can we raise awareness of rare diseases among the public and among us doctors to ensure faster diagnosis and treatment? 6. Pediatrician: How did you get into this very specific field of rare diseases? 7. Konkret Ärzteodyssey: Why is that? Anyone can have genetic testing; there are specialized centers like yours. Why does it sometimes take so long? 8. Konkret Wegweiser: How do you want to do it? What do you do differently than others? 9. Process: What is the typical process when patients contact you? *NEW video podcast: Weigl's MedNight https://open.spotify.com/episode/5Xcv... Do you like my channel and would you like to say thank you? Become a channel member and receive exclusive benefits:    / @doktorweigl1   ⏩ Get informed first, then supplement: Feel free to take a look at my guides https://bit.ly/RatgeberHowTo ✅ ❎ 100% independent ❎ 100% study-based ❎ 100% medically accurate My guest today: Professor Grigull, a pediatrician and rare disease specialist known as the "detective for sick children with unclear diagnoses." His passion for medicine and tireless dedication have made him a leading expert in the field. With his deep understanding and compassionate approach, he has guided numerous families through the complexities of rare diseases. Professor Grigull represents hope, commitment, and innovation and strives to improve the lives of patients with rare diseases. #cancer #oncology #medicine #videopodcast #medicinepodcastMedNight ▬ About this video podcast ▬▬▬▬▬▬▬▬▬ Medicine for everyone as a late-night show: In "Weigl's MedNight," podcast host Dr. med. Dr. rer. pol. Tobias Weigl, Germany's most well-known YouTube doctor, speaks with decision-makers in cutting-edge medicine about pressing and current health topics. In the "Weigl's MedNight" video podcast from the University Hospital Bonn (UKB), you'll get high-quality medical knowledge explained simply. The best minds offer practical health tips and occasionally share insider information about medical innovations and background information you can't get anywhere else. My partner: https://www.ukbonn.de/ ▬ Previous episodes ▬▬▬▬▬▬▬▬▬▬▬▬▬▬ Episode 1: The Future of Surgery: VIRTUAL REALITY & Artificial Intelligence in the Operating Room ⏩ https://bit.ly/Videopodcast_Folge1 Episode 2: Unfulfilled Desire to Have Children: Causes, Tips & Treatment Options ⏩ https://bit.ly/Videopodcast_Folge2 Episode 3: Hospitals and Surgeries: Climate Killers ⏩ bit.ly/MedNight_Folge3 Episode 4: Men's Health: Visit to the Urologist! "Movember" Campaign ⏩ https://bit.ly/MedNight_Folge4 Episode 5: Overcoming Personal Crises: The Importance of Resilience ⏩ https://bit.ly/MedNight_Folge5 Episode 6: When the Heart Suffers: Regaining Strength with New Heart Valves ⏩ https://bit.ly/MedNight_Folge6 Episode 7: A Shocking Cancer Diagnosis: The Daily Struggle & the Latest Therapies ⏩ https://bit.ly/Mednight_Folge7 ▬ Social Media ▬▬▬▬▬▬▬▬▬▬▬▬▬▬▬▬ ►Facebook: https://bit.ly/facebook_DrWeigl ►Website: https://doktorweigl.de ►Twitter: https://bit.ly/Twitter_DrWeigl ►Instagram:   / doktorweigl   ▬▬▬▬▬▬▬▬▬▬▬▬▬▬▬▬▬▬▬▬▬▬▬▬▬▬ Legal Notice / Disclaimer: These videos are for your information only and never replace personal advice, examination, or diagnosis by a licensed, qualified specialist. Especially with medications, consult your doctor and read the package insert carefully. The content provided cannot and may not be used to make independent diagnoses. Liability excluded. Facebook & Instagram icon: Icon made by freepik from www.flaticon.com Twitter icon: Icon made by Pixel perfect from www.flaticon.com Sound effects obtained from https://www.zapsplat.com