У моего сына синдром Кабуки: Лилия | Быть мамой

Kabuki syndrome is a very rare genetic disorder characterized by various developmental defects, intellectual disability, growth retardation, and a distinctive appearance. People with this syndrome visually resemble Kabuki actors: elongated, large eyes, lush eyelashes, and a flattened nose. Liliya learned of her son's condition not immediately after his birth, but when Yaroslav was almost three years old. It turned out to be a spontaneous mutation, and Yaroslav's parents were not carriers of the defective gene. For six months, Liliya struggled to accept her child's diagnosis, but soon pulled herself together. Yaroslav is now nine years old. He cannot walk without support and does not speak (he only vocalizes). For her son's sake, Liliya left the IT industry and, together with her husband, opened a development center for children where parents of children with various diagnoses can seek help. www.otkrytiya.bel   / otkrytiya   My son has Kabuki syndrome: Lily | Being a mom ➞    • У моего сына синдром Кабуки: Лилия | Быть ...   New videos every day – subscribe! ➞ http://bit.ly/Subscribe_TUTBY​​​​​ ================================================ If you like the video, don't forget to like and subscribe to the channel, this will help it spread. Thank you!