Outcome Measurements Session Alignment

2026 CCDS Scientific & Patient Symposium Outcome Measurements Session Alignment Jam Heidi Wallis, ACD Welcome 00:00:00 Andreas Schulze, University of Toronto/SickKids (Presented by Heidi Wallis) Understanding Variability of Plasma GAA Measurements 00:06:19 Jamie Capal, Cincinnati Children’s Hospital Medical Center Measuring Seizures in a Clinical Trial 00:15:13 Beth Potter, University of Ottowa; Audrey Thurm, Boston Children's Hospital Measurement Tools Used in Published Trials 00:35:01 Jill Henley, BrainWise Parent Talk 00:54:08 Audrey Thurm, Boston Children's Hospital Participating in a Trial: Understanding Risks & Benefits and Different Types of Trials 01:02:09 Celeste Graham, ACD Report: PAReNts 2.0 Smallest Meaningful Changes 01:10:48 Emily Reinhardt, ACD Report: Community Survey Results 01:20:21 Judith Miller, CHOP; Jill Henley, BrainWise Alignment of Existing Measurement Tools with the Needs of Our CCDS Community 01:32:23