Visual Snow Initiative Roundtable 2025: Visual Snow Syndrome Discussion

The Visual Snow Initiative has released its newest Roundtable Discussion video, hosted by VSI Founder and medical advocate Sierra Domb. This collaborative, conversation-style meeting brings leading experts in Visual Snow Syndrome (VSS) together to share research, compare findings, ask critical questions and learn more for future studies. The discussion features a panel of experts from around the world, many of whom pioneered the earliest research, contributed to key milestones in the recognition and understanding of the condition, and continue to lead advancements in their field. The panel includes Dr. Christoph Schankin, Dr. Peter Goadsby, Dr. Edward Boyden, Dr. Francesca Puledda, Prof. Osvaldo Gervasi, Prof. Damiano Perri, Dr. Owen White, Dr. Sui Wong, and Dr. Alexander Baldwin. 0:00 - 5:18 Sierra Domb: Opening Remarks 5:21 - 6:06 Dr. Baldwin Introduction 6:07 - 6:33 Dr. Goadsby Introduction 6:34 - 7:03 Honoring Dr. Goadsby’s Contributions 7:04 - 8:46 Dr. Puledda Introduction 8:47 - 9:45 Dr. Wong Introduction 9:47 - 10:56 Dr. Schankin Introduction 10:57 - 12:37 Dr. White Introduction 12:40 - 14:12 Recognizing Dr. White & Dr. Fielding 14:13 - 15:13 Dr. Damiano Perri Introduction 15:14 - 16:04 Professor Osvaldo Gervasi Introduction 16:05 - 17:09 Dr. Boyden Introduction 17:10 - 21:03 VSS and Brain Hyperactivity 21:04 - 24:00 VSS and Diet, Vitamins & Supplements 24:01 - 27:33 Biomarkers & Possible Drug Treatments for VSS 27:34 - 30:54 VSS Biomarkers, HPPD & Migraine Aura 30:55 - 35:19 Should It Be Called “Visual Snow Syndrome”? 35:20 - 38:02 Dr. Baldwin’s Research & Future Studies at McGill University 38:03 - 43:28 VSS and Migraine with Aura 43:29 - 52:03 Genetics & Molecular Testing for Future VSS Treatment 52:04 - 54:38 Can Neuromodulation Help VSS? 54:39 - 59:36 Exploring VR/AR & Visual Simulations for VSS 59:37 - 1:04:52 Can “Visual Noise” Ease Symptoms? 1:04:53 - 1:13:16 MBCT (Mindfulness-Based Cognitive Therapy) for VSS 1:13:17 - 1:15:04 Why VSS Is Hard to Describe 1:15:05 - 1:19:58 Children with VSS & VSI4Kids 1:20:02 - 1:24:34 Extra Questions & Research Insights 1:24:35 - 1:26:09 Collaboration & Shared Progress 1:26:10 - 1:27:42 Thank You & Additional Resources Visual Snow Initiative (VSI) - Official Links 🔹 VSI Website: https://www.visualsnowinitiative.org/ 🔹 VSI 4 Kids Website: https://vsikids.org 🔹 Support Research for Visual Snow Syndrome: https://visualsnowinitiative.networkf... VSI on Social Media 🔹 Instagram:   / visualsnowinitiative   🔹 TikTok: https://www.tiktok.com/@visualsnowini... 🔹 X/Twitter:   / visualsnowinit   🔹 Facebook:   / visualsnowinitiative   🔹 LinkedIn:   / visual-snow-initiative   🔹Google Scholar: https://scholar.google.ca/citations?u... About The Visual Snow Initiative (VSI) is a nonprofit organization that was created to establish global awareness, education, recognition, resources, and research for Visual Snow Syndrome (VSS) 👁️🌨️🧠, a neurological condition affecting an estimated 2-3% of the global population. VSS can impact vision, hearing, cognition, sensory processing, and quality of life for individuals of all ages. #VisualSnow #VisualSnowSyndrome #VSS #SeeingStatic #Palinopsia #Neurodivergent #Neurodiversity #InvisibleIllness #ChronicIllness #ChronicMigraine #Floaters #Afterimages #LightSensitivity #Tinnitus #VisionTherapy #Neurology #Anxiety #Depression #Dissociation #NeuroOphthalmology #NeuroEyeHealth #Brain #BrainHealth #BrainScience #NeuroScience #Neuroplasticity #BrainFog #Migraine #CognitiveHealth #NeuroResearch #Science #MedicalScience #BrainResearch #Neuroscience #ScientificResearch #VisualSnowInitiative #VSI #Advocacy #Education #Resources #Research #Recognition #SupportResearch #Nonprofit #Charity #HealthAwareness #MedicalResearch #HealthEducation #HealthCare #Doctor #TikTok #Instagram #YouTubeShorts #ExplorePage #Trending #FYP #Health #HealthAdvocacy #LearnOnTikTok #NORT #MBCT #Vision #Sleep #Symptoms #Ophthalmology #Aura #NightBlindness #Halos #Greenscreen #Depersonalization #LightSensitivity

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