Unlock PNH care that works for you: How to talk to your doctor

Speak up! Be real with your doctor Be honest with your doctor about what you’re experiencing. Having a conversation around a sub-optimal response is difficult but necessary. Watch Desirae's story as she shares her challenges talking about symptoms, results, and the progression of her paroxysmal nocturnal hemoglobinuria (PNH) with her doctor. Dr. Larratt also provides expert insight on the importance of effectively advocating for yourself and speaking up about your PNH symptoms. If you’re unsure how to talk to your doctor about a sub-optimal response, get some pointers here: https://www.rethinkpnh.ca/preparing-f.... Disclaimer: The experiences mentioned in this video, including tests, treatments, and treatment results, represent one patient’s experience only and may not be representative of all patients. This video does not replace medical advice from your doctor. Always consult your doctor. Thank you for watching! Visit https://www.rethinkpnh.ca to learn more about a sub-optimal response