「全身やけど？」周囲から心ない言葉や冷ややかな視線‥過去と今 “ピエロと呼ばれた息子”定期配信型ドキュメンタリー「道化師様魚鱗癬」第２７話

Hamaguchi Gaku (4) is battling the incurable skin disease "Clown Ichthyosis." This time, we interviewed him about "Shopping with Mom." People with clown ichthyosis can experience discrimination and prejudice due to their appearance. In the past, Gaku had often received cold comments and stares when out and about, such as at the supermarket. In order to reduce discrimination and prejudice against ichthyosis... His parents felt it was important to raise awareness about the disease, so they continued to post information on their blog and even agreed to be interviewed by CBC TV. The blog has now been published as a book and is now available on YouTube, and little by little, opportunities to raise awareness about the disease are increasing. Recently, Gaku says he has also been experiencing changes in the way he interacts with others when out and about. Ichthyosis is a disease that causes the skin to dry out, become scaly, and peel. Clown Ichthyosis is the most severe of the two, with an estimated 1 in 300,000 people affected in Japan. This is a regularly scheduled documentary following Gaku, a 4-year-old boy battling clown ichthyosis. Filmed: October 2021 Parents' blog: "My son was called a clown right from birth" https://ameblo.jp/motherofclown/ #CBCChant #MySonWhoWasCalledAClown #ClownIchthyosis #Parenting #Documentary CBC TV's "Chant!" airs Monday through Friday from 3:49 PM to 7:00 PM in Aichi, Gifu, and Mie.