HOW WE MET // the Brain Leak Doctor who CHANGED MY LIFE with Patching

Welcome, fam! I betcha me meeting my CSF Leak Specialist did not happen how you think! Today, I'm sharing a deeply personal journey that's been a game-changer in my life: exactly how the quest to find the right doctor for my CSF Leak (Cerebrospinal Fluid Leak) finally came to an end. Join me as I talk about the highs, the lows, and the unexpected twists that led me here. It all began with what I thought were chronic migraines, but the symptoms didn't quite add up. Little did I know, this was just the beginning of a complex journey. I know many of you are here because you've been a part of my story. You've seen the struggles, the doubts, and the moments of sheer frustration as I navigated through misdiagnoses and encountered doctors who didn't quite understand. But let me debunk a myth: being on YouTube didn't grant me any special treatment. It was a grueling path of being overlooked until I found a specialist who truly listened and believed in my symptoms matching a CSF leak. From being initially dismissed to finally discovering a doctor who saw beyond the surface, this journey has been a rollercoaster. And here's the takeaway: never, ever give up. Even when it feels like the road ahead is bleak, finding the right doctor can change everything. I'm here to share my story not to dwell on the past but to inspire hope and perseverance for anyone facing similar health battles. Your journey matters, and there's light at the end of the tunnel. Join me as I unfold the details, because finding the right doctor is a game-changer—I'm living proof of that. If you HAVE POTS and SUSPECT A LEAK, watch this: ○ POTS vs. Spinal CSF Leaks:    • POTS and Spinal CSF Leaks // What Every PO...   ○ Main WEBSITE: mommingwithmigraine.com ○ Daily Life: INSTAGRAM.com/mommingwithmigraine ---------------------------------------------------------------------------------------------------------------- SOME RECENT VIDEOS… CSF Leak Diagnosis & Treatment (2023): ○ Suspecting my “migraines” are a Leak:    • Am I MISDIAGNOSED?! // CSF Leak Symptoms M...   ○ 48-hour Flat Test Vlog:    • VLOG + TIPS: The 48-hour FLAT TEST // The ...   ○ Brain Leak MRI Findings!    • SHOCKING NEWS // My OLD Brain MRI Shows Si...   ○ Learning I'm getting treatment!    • CONFIRMED: A BLOOD PATCH is in my Future!?...   ○ Wavering on the path forward:    • "I think I was wrong" // WAVERING on Blood...   ○ Choosing blood patch vs CT myelogram:    • My Spinal CSF Leak- BIGGEST NEWS YET!! // ...   ○ What is a blood patch?    • What is a BLOOD PATCH? // Showing Why I'm ...   ○ What the patch procedure was like:    • My First BLOOD PATCH PROCEDURE // What a B...   ○ Blood Patch Recovery weeks 0-2:    • Blind BLOOD PATCH RECOVERY // Part 1: Proc...   ○ Blood Patch Recovery weeks 2-4    • RECOVERY PART 2 // The Symptoms that my Fi...   ○ CT Myelogram Plan:    • Procedure 2 BOOKED // 2 CT MYELOGRAMS & a ...   ○ Q & A on patching, etc:    • Q&A // Blood Patch Update, Service Dog Ins...   ○ Day Before Myelograms & Patching:    • CT MYELOGRAMS + PATCH GAME PLAN // Flying ...   ○ CT Myelogram Procedure Day VLOG:    • Day of CT Myelogram // Procedure VLOG   Medical Gaslighting/Diagnosis Roller Coaster videos: ○ Dr. Phil Show - Medical Gaslighting:    • I Went On DR. PHIL! // Medical Gaslighting...   ○ Dr. Phil Q&A:    • DR. PHIL SHOW Q&A // Traveling with 2 Babi...   ○ CSF Leak Diagnosis Update:    • CSF Leak Diagnosis UPDATE // My Neurosurge...   ○ After Medical Gaslighting:    • After MEDICAL GASLIGHTING // The doctors w...   ○ Sick Day Vlog & Canceled CSF Appt:    • Quick SICK DAY VLOG, & RIP to my short-liv...   ○ Being Refused a Spine MRI:    • Diagnosis Story UPDATE // No MRI...time fo...   Content ID Code: FWLDZZNR3TCEWOTG ---------------------------------------------------------------------------------------------------------------- NOTE: Though I talk about medical topics, nothing on my channel is meant as medical advice (for all statements, past or future). I am a patient sharing my personal experiences, but I am not a doctor nor am I medically trained. My channel is for entertainment and community only. ---------------------------------------------------------------------------------------------------------------- DISCLAIMER: Links included in this description might be affiliate links. If you purchase a product or service with the links that I provide I may receive a small commission. There is no additional charge to you! Thank you for supporting Momming with Migraine so I can continue to provide you with free content each week!