Life, Unexpected: Supporting Young Palliative Patients And Their Families - Part 3/4 | Full Episode

Kenneth Mah and Patricia Ng founded the Rare Disorders Society Singapore and have evolved it from a small support group of families to the charity organization it is today. They also bring personal experience to their mission as they journey through life with their daughter, Chloe, who has the rare genetic disorder, Pompe Disease. Chloe was diagnosed with the disease at seven months old, and has beaten death several times. Every two weeks, Chloe undergoes Enzyme Replacement Therapy at KKH Women’s and Children’s Hospital. We join Kenneth and Patricia on their emotional journey as they go through the procedure with Chloe, spending three days in the hospital with her. WATCH MORE Life, Unexpected Ep 1:    • Life, Unexpected: Caring For Children With...   Ep 2:    • Life, Unexpected: When Your Child Has A Li...   Ep 4:    • Life, Unexpected: Hope For Young Palliativ...   0:00 Not the End 4:22 My Love is Not Rare 12:30 As a Dad 16:45 Friendly Competition 19:58 An Oasis 24:06 A Light Above 25:58 An Angel’s Wings 28:19 Chloe’s Procedure 37:50 A Fear of Losing Her 40:16 Overcoming the Odds =========== About The Show: Follow the inspiring stories of four individuals under paediatric palliative care as they and their families navigate the unexpected realities of life and death with courage and love. =========== #CNAInsider #LifeUnexpectedCNA #Illness #Caregiver #PalliativeCare For more, SUBSCRIBE to CNA INSIDER! https://cna.asia/insideryoutubesub Follow CNA INSIDER on: Instagram:   / cnainsider   Facebook:   / cnainsider   Website: https://cna.asia/cnainsider