445. Heart Failure: The Essential Role of Palliative Care in Advanced Therapies with Dr. Sarah Chuzi

Dr. Jenna Skowronski, Dr. Shazli Khan, and Dr. Alix Barnes discuss the involvement of palliative care throughout the heart failure spectrum with Dr. Sarah Chuzi. Audio editing for this episode was performed by CardioNerds Intern, Dr. Julia Marques Fernandes. In this episode, we discuss utilizing palliative care principles while caring for patients with heart failure, particularly those being considered for advanced therapies. We emphasize utilization of communication frameworks when discussing prognosis and making decisions on pursuing therapies such as palliative inotropes, left ventricular assist devices (LVADs), and heart transplant. Additionally, we discuss when to involve specialty palliative care services. Finally, we highlight the difference between palliative care and hospice and how to help patients navigate the transition from life-prolonging care to hospice. Dr. Jenna Skowronski is the Chair for the CardioNerds Heart Failure Council. Dr. Jenna Skowronski and Dr. Shazli Khan are the Co-chairs for the CardioNerds Advanced Heart Failure Therapies Series. Dr. Alix Barnes is the CardioNerds FIT Ambassador at UPMC and member of the CardioNerds Critical Care Cardiology Council. Enjoy this Circulation Paths to Discovery article to learn more about the CardioNerds mission and journey. (https://www.ahajournals.org/doi/abs/1...) US Cardiology Review is now the official journal of CardioNerds! Submit your manuscripts here. (https://www.uscjournal.com/articles/c...) CardioNerds Heart Success Series Page (https://www.cardionerds.com/heart-fai...) CardioNerds Episode Page (https://www.cardionerds.com/episodes/) CardioNerds Academy (https://www.cardionerds.com/academy/) Cardionerds Healy Honor Roll (https://www.cardionerds.com/honor-rol...) CardioNerds Journal Club (https://www.cardionerds.com/cardsjc/) Subscribe to The Heartbeat Newsletter! (http://eepurl.com/hazGYL) Check out CardioNerds SWAG! (https://teespring.com/cardionerds?pid...) Become a CardioNerds Patron! (  / cardionerds  ) Pearls 1. Primary palliative care is care provided by a clinician that is not a palliative care specialist, such as a heart failure clinician having a conversation with a patient about their goals and values in clinic.  2. Taking time to get to know a patient as an individual and learning their goals and values prior to diving into conversations about prognosis and change in treatment plan facilitates more effective goals of care discussions.   3. Utilizing and practicing a communication framework can improve our skills at goals of care discussions.   4. Palliative inotropes should be reserved for patients experiencing symptomatic benefit from the therapy that outweighs the associated risks including arrhythmias and infections. The burden of managing these therapies at home should also be considered. 5. Partnerships between cardiologists and hospice agencies can improve the experience for patients with heart failure who enroll in hospice. Cardiologists can continue to see their patients even after hospice enrollment and help with symptom management.   Notes Notes: Notes drafted by Dr. Barnes. 1. What is the difference between primary palliative care and specialty palliative care? • Primary palliative care is the delivery of palliative care services that any clinician can deliver. • This includes aligning treatment with a patient’s goals and basic symptom management. For heart failure patients, symptom management can include cardiac symptoms such as dyspnea and chest pain as well as managing comorbid mood disorders such as adjustment disorder, depression, and anxiety. • Advanced palliative care skills take additional training and time to develop. These include leading a difficult family meeting, managing symptoms that are not controlled with standard therapies and responding to emotional and spiritual distress. When these situations are encountered, referral to a specialty palliative care service should be considered. 1 2. How is palliative care integrated throughout the disease trajectory of a patient with heart failure? • Heart failure clinicians deliver primary palliative care when assessing a patient’s preferences, goals and values or managing symptoms. • As a patient’s disease progresses, the heart failure team also engages in primary palliative care when delivering news about prognosis. • When advanced therapies are being considered, utilization of shared decision-making (SDM) should be employed (see question 3 for further discussion on SDM). • For patients being considered for LVAD, the Centers for Medicare and Medicaid Services (CMS) mandates th...