Tethered Cord Syndrome in EDS: The Overlooked Diagnosis

Today's video discusses tethered cord, an often unrecognized issue in those with ehlers danlos syndrome and hypermobility syndrome. I'll be explaining the symptoms that might suggest a diagnosis, as well as how it's evaluated from a neurology perspective. Join me as I discuss this important issue for the eds and chronic illness community and the potential impact on the spinal cord. ____________________________ CHAPTERS 00:00 What Is Tethered Cord Syndrome? 00:40 Common Symptoms: Urinary Issues, Back Pain, and Leg Heaviness 01:55 Unique Clues: Sitting with Feet Up or Sleeping in Fetal Position 02:50 Understanding the Spinal Cord and the Role of the Phylum 03:54 Occult Tethered Cord: When MRI Doesn’t Show It 04:39 How Nerve Compression Leads to Pain and Bladder Problems 05:00 Diagnosing Tethered Cord with Urodynamic Testing 06:16 Using Prone and Supine MRI to Detect Cord Movement 07:08 Surgical Treatment: Cutting the Phylum to Release the Cord 07:42 Long-Term Outcomes and Where to Find Trusted Resources ____________________________ HELPFUL LINKS: Ehlers-Danlos Society: https://www.ehlers-danlos.com/ Health Professionals Directory: https://www.ehlers-danlos.com/healthc... Centers of Excellence: https://www.ehlers-danlos.com/centers... EDS Echo: https://www.ehlers-danlos.com/echo/ Hypermobility 101: https://ehlers-danlos.org.nz/hypermob... Chronic Pain Partners: https://www.chronicpainpartners.com/ Bendy Bodies Podcast: https://www.bendybodiespodcast.com/ Unraveled Podcast:   / unraveledpod   Bobby Jones CSF: https://bobbyjonescsf.org/ Inspire: https://www.inspire.com/groups/eds-an... Leslie Russek - https://www.ehlers-danlos.com/leslie-... Jeannie De Bon: https://jeanniedibon.com/ David Saperstein - https://complexneurology.com/ Dr. Kaufman and Ruhoy -   / unraveledpod   ________________________ Follow Dr. Clair's Channels! Dr. Clair's YouTube Channel: ‪@DoctorClair‬ Dr. Clair's Instagram:   / dr.clairfrancomano   ____________________________ The information contained in the multimedia content ("Video Content") has been made available for informational and educational purposes only. The Video Content should not be considered a substitute for professional medical advice, diagnosis, or treatment. Always consult with your physician or a qualified health provider for any questions you may have regarding a medical condition. Do not ignore professional medical advice or delay seeking it based on the information provided in the Video Content. All liability for any direct, indirect, punitive, special, incidental, or other consequential damages arising from the use of the Video Content is disclaimed. The Video Content is offered as is, without warranties.