Everything you wanted to know about vEDS: Expert Q&A

Watch the full replay of our highly informative and engaging webinar titled "Everything You Wanted to Know About vEDS", where our experts answer burning questions from patients across Europe about this rare disease. In this webinar, held on April 18, 2023, at 6pm, we had the privilege of hosting an esteemed panel of experts: Prof Tristan Mirault, Professor of Vascular Medicine from AP-HP Hôpital Européen Georges Pompidou and Dr. Anna Stenborg, Physician from Uppsala University Hospital, and moderated by Eva Collado, a vEDS patient advocate and Vice President of the Spanish Patient Organization for Ehlers-Danlos Syndromes and Hypermobility. Throughout the webinar, our experts addressed a wide range of topics related to vascular Ehlers-Danlos syndrome such as Pregnancy, Pain, Genetics, Lifestyle, Medication and more. Contents of the video 0:00:00 Intro 0:04:26 Genetics 0:12:00 Dealing with vEDS 0:18:07 Medication 0:23:43 Pregnancy 0:26:45 Lifestyle 0:46:01 Pain 0:59:23 Conclusion This webinar replay will provide valuable insights and empower you to make informed decisions regarding vEDS. Share this webinar with anyone who might benefit from this valuable information. For more information about VASCERN, please visit: https://vascern.eu/ Follow us on Facebook: VASCERN: The ERN on rare multisystemic vascular diseases   / vascern.eu   Follow us on Twitter: VASCERN   / vascern   Follow us on LinkedIn: VASCERN, European Reference Network on Rare Multisystemic Vascular Diseases