Drug Safety for Acute Hepatic Porphyrias

Join porphyria expert Dr. Bruce Wang and advocate Nicolas Frias for an introduction to medication safety in acute porphyrias (AIP, HCP, VP & ADP). Learn: ✔️ Why some medications trigger AHP attacks ✔️ How experts decide what is considered safe, potentially unsafe, unsafe, or unknown ✔️ How to use the database in daily life ✔️What to do if a drug is not listed Educational session only. Always confirm medication decisions with your healthcare team. Important links: Participate in drug safety research: https://www.porphyria.org/research-op... Patient-friendly app and database: https://porphyriadrugs.com/ NAPOS database: https://drugsporphyria.net/ 00:00 Welcome and Introductions 3:08 Presentation Overview 7:43 What causes acute porphyria attacks 12:00 How to use the drug safety database 34:45 Making decisions about medications: other factors to consider 45:33 Drug safety research 50:03 Questions