#VWDTalk Challenges Women With Von Willebrand Disease Face Today | Natalie Philbert

Welcome to the VWD Symposium Talk Series! Natalie Philbert, Manager of Women’s Services and Programs, Hemophilia Ontario, delves into the fundamental hurdles facing women with VWD, offering solutions for enhancing care systems. She illuminates discrepancies in care between VWD and Hemophilia, advocating for tangible changes. Philbert also explores the causes behind diagnostic delays and envisions symposium-driven enhancements. Lastly, she imparts her perspectives to enrich comprehension and treatment of VWD. Timestamps: 0:00 - What are the primary challenges women with VWD face today, and how can we evolve the current care and support systems to better meet their needs? 1:52 - In comparing the care provided to VWD patients with that for Hemophilia patients, where do you see disparities and what improvements do you suggest? 4:30 - How long does it take to diagnose a woman with VWD? Why is that? 6:00 - What practical changes do you hope will emerge from this symposium for women with bleeding disorders? 6:49 - Could you share 2-3 key takeaways from your session that could transform the understanding or treatment of VWD? About Von Willebrand Disease and VWD Symposium: Von Willebrand Disease (VWD) is one of the most prevalent inherited bleeding disorders globally, impacting thousands of Canadians. The Von Willebrand Disease State of Care Symposium is an endeavor to give shape to future standard of care for VWD patients that takes into consideration their unmet needs, providing them an equal opportunity to engage fully with all life experiences in Canada. The faculty will address practical issues such as diagnostic challenges, treatment gaps, role of prophylaxis and long-term management strategies along with aspects of quality-of-life of VWD patients. #vonwillebranddisease #VWD #hemophilia #heavymenstrualbleeding #bleedingdisorders