Living with Rare Forms of EDS || vEDS & kEDS || #EDSAwarenessMonth
If you found this video helpful please support my channel by taking a free trial of Audible Audiobooks: https://www.amazon.co.uk/Audible-Memb... A lovely viewer wanted to see more people with rarer forms of EDS being represented this awareness month, I agreed and took on the challenge. I've been wanting to find out more about other type and get more different types involved in my videos so I was glad to be pointed in the direction of Katie (The Translucent one) who lives with Vascular Ehlers Danlos Syndrome & Poppy Akinola who lives with Kyphoscoliotic Ehlers Danlos Syndrome. In this video these lovely ladies share what its like to live with an extremely rare form of EDS and the difficulties being rare can cause. Katie - @sillybugstudios / @sillybugstudios Poppy - @PoppyOA - / @poppyoa https://poppyoa.com/ You can also find me on other social media: Blog: ChronicallyJenni.wordpress.com Facebook: facebook.com/ChronicallyJenni Instagram: @ChronicallyJenni Twitter: @JenniPettican Email: [email protected] If you liked this video please hit subscribe! #ZebraStrong #EDSAwarenessMonth
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