IVIG: What a Family Needs to Know

In this video, Dr. Megan Curran of Cure JM's Clinical Care Network, gives an informative talk about IVIG. In this presentation, Dr. Curran gives an overview of the immune system, discusses what IVIG is, describes how it works, and then provides dosing recommendations, as well, as tips and tricks for using IVIG with JM patients. 0:00:00 Megan Curran, MD, What Is IVIG 0:00:45 Immune System Overview 0:06:06 IVIG Overview 0:10:33 How Do We Think IVIG Works? 0:13:14 IVIG Studies 0:19:29 IVIG Side Effects 0:23:19 IVIG Dosing Recommendations 0:25:41 IV vs. Subcutaneous (SubQ) 0:28:12 Tips and Tricks for Those Receiving IVIG 0:30:37 Cure JM Co-Founder Tom Hume Asks Panel to Introduce Themselves (James Sheets, CVS Pharmacy, Maddie Davis, JDMer, Who Switched from IVIG to SubQ, Michelle Vogel, CSI Pharmacy, Colleen Marchetta) 0:34:48 Questions from the Audience 0:34:49 Can You Do IVIG If Your Child Has High Platelets? 0:36:53 Is There a Connection Between Plasma Collection and the IVIG Shortage? 0:38:47 What Is Causing the Current IVIG Shortage? 0:41:43 SuqQ Overview 0:43:17 Maddie Davis Demonstrates SubQ, Narrated by a Nurse from CSI Pharmacy 0:57:31 How Does the Cost of SubQ Compare to the Cost of IVIG? 0:59:48 Is Thrombosis a Risk for SubQ? 1:01:08 Are There Insurance Issues Switching from SubQ to IVIG or Vice Versa? 1:03:15 Differences Between Receiving SubQ/IVIG In-Patient or At-Home? 1:05:15 Does Maddie Switch Out Syringes? 1:05:36 Are There Many Reports of Adverse Reactions During Home Infusions? 1:07:41 If You Have Bad Side Effects to IVIG, Will You Have the Same Side Effects with SubQ? 1:09:03 Any Tips on How to Talk to You Doctor About Switching from IVIG to SubQ? 1:10:44 What Are the Differences In Dosage/Dosage Over Time Between IVIG and SubQ? 1:11:39 What Are Minimum/Maximum Number of Injection Sites for SubQ? 1:12:30 Are There Relevant, Ongoing Clinical Trials for SubQ? 1:13:16 Do the SubQ Injection Sites Leave Visible Marks? 1:13:59 For Reference, Is the SubQ Injection Needle Similar in Size to an Acupuncture Needle? 1:14:36 Do We Know of Any Risks Associated with the Use of Long-Term Usage of IVIG?