42nd dose of Besremi (PV is a long game) 🩸My Polycythemia Vera Journey

#jakmutation #polycythemia #mpn #polycythemiavera #portalveinthrombosis #besremi #jak2v617f #jak2 #intereron #phlebotomy #pvcommunity Living with polycythemia vera (PV) often means facing a lot of questions — especially around phlebotomy, medications like Besremi (ropeginterferon alfa‑2b), and what the long‑term path might look like. In this video, I share my personal experience and a simple analogy I use to think about PV treatment — not as medical advice, but as a way of understanding the journey. I talk about why PV is a long game, how different tools may be used at different times, and why patience matters when learning how your own body responds. This video is especially for: • people newly diagnosed with PV • those transitioning from phlebotomy to Besremi • anyone researching interferon treatment • members of the PV / MPN community looking for lived experience I’m currently taking Besremi and sharing what the process has been like from a patient’s perspective only. ⚠️ Important: This video reflects my personal experience and is not medical advice. Always talk with your hematologist or care team about diagnosis, treatment, and medication decisions. If you’re on this road, you’re not behind. PV is a long game — and learning how your body responds takes time. Thank you for being here, and for being part of this community. 🙏🩸