【心疾患4歳】鋳型肺炎から2年/一緒に見上げた花火

心疾患ふーくん4歳4ヶ月。体調を崩しやすい春を乗り越えつつあります。 今日は家族みんなで行った花火大会の日の様子です。夜ご飯のお弁当を子供達と作りおにぎりを楽しそうににぎにぎ。お出かけが楽しみで朝からウキウキな子供達です。 花火は感動的でした。眺めているとふーくんが鋳型肺炎になった時のこと思い出しました。 病室でふーくんを抱きしめながら見た小さな花火。今日は家族で観られた、この事実と現実に感謝の想いでいっぱいです。ふーくん、元気でいてくれてありがとう。 #先天性心疾患 #難病 #ふわりの日常 #医療的ケア児 #発達ゆっくりさん

The current situation of a 3-year-9-month-old child with a developmental slowness and incurable i...
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The current situation of a 3-year-9-month-old child with a developmental slowness and incurable i...

tagesthemen 22:15 Uhr, 08.07.2026
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tagesthemen 22:15 Uhr, 08.07.2026

Heart disease at age 3/After surgery, he recovered at home and resumed nursing care
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Heart disease at age 3/After surgery, he recovered at home and resumed nursing care

[Incurable Disease] Two young siblings with muscular dystrophy... Family waiting for new drug to ...
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[Incurable Disease] Two young siblings with muscular dystrophy... Family waiting for new drug to ...

心疾患の1歳半健診/ハイハイでも言葉ゼロでもありがとう
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心疾患の1歳半健診/ハイハイでも言葉ゼロでもありがとう

Mirjam wird sterben - Wenn das Leben schon mit 14 endet | SWR Doku
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Mirjam wird sterben - Wenn das Leben schon mit 14 endet | SWR Doku

A non-fiction story about a fight between two brothers, ages 5 and 2, and their reconciliation
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A non-fiction story about a fight between two brothers, ages 5 and 2, and their reconciliation

【年金いくら?】勝手に引いておいて…会社員70歳の年金インタビュー
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【年金いくら?】勝手に引いておいて…会社員70歳の年金インタビュー

A Day with the 26-Year-Old Young Female Owner of a Stand-Up Soba Shop in Osaka!
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A Day with the 26-Year-Old Young Female Owner of a Stand-Up Soba Shop in Osaka!

Five surgeries / Three-year-old overcomes pain to make doughnuts
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Five surgeries / Three-year-old overcomes pain to make doughnuts

Sophie - Ein göttliches Geschenk - Leben mit Down-Syndrom
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Sophie - Ein göttliches Geschenk - Leben mit Down-Syndrom

【保護猫】恐怖で ご飯も食べず固まっていた猫が…心を開くまで
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【保護猫】恐怖で ご飯も食べず固まっていた猫が…心を開くまで

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2つの大病を乗り越えて 小児がんのよさこい娘が26歳に

How to Restore a Historic Door | SWR Craftsmanship
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How to Restore a Historic Door | SWR Craftsmanship

[Heart Disease] Christmas preparations for a developmentally slow child aged 3 years and 11 months
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[Heart Disease] Christmas preparations for a developmentally slow child aged 3 years and 11 months

【無気力】おかずは冷凍食品に任せる平日3日間の晩ご飯【お気に入り冷凍食品】
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【無気力】おかずは冷凍食品に任せる平日3日間の晩ご飯【お気に入り冷凍食品】

Argentinien – Ägypten Highlights | Achtelfinale, FIFA WM 2026 | sportstudio
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Argentinien – Ägypten Highlights | Achtelfinale, FIFA WM 2026 | sportstudio

【Daily Life in Japan 🇯🇵】Dad of 2 under 4 | Double Shift — Work From Home Dad | Friday Routine
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【Daily Life in Japan 🇯🇵】Dad of 2 under 4 | Double Shift — Work From Home Dad | Friday Routine

I served Hiyashi Chuka to my Swiss family for the first time...
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I served Hiyashi Chuka to my Swiss family for the first time...

4 AM Wake-Up Vlog | Mom’s Morning Routine and Grandma’s Peaceful Evening
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4 AM Wake-Up Vlog | Mom’s Morning Routine and Grandma’s Peaceful Evening