À ESPERA DE UM MILAGRE

In this episode of Voice of the Mothers, you will learn the story of Caio and the family behind the Save Caio movement. What began with developmental delays turned into a race against time for answers. After many consultations, exams, and silences, the diagnosis came: CLN7, an ultra-rare, progressive, and still little-known genetic disease. There are no pretty phrases or prepared speeches here. There is a heavy routine, real fear, difficult decisions, and a system that often arrives too late. There is also information, awareness, and the urgency of talking about early diagnosis, rare diseases, and access to treatment. This conversation is for those who need to understand that visibility without depth hurts. And that acceptance begins with listening to the whole reality. ___________________________________________ We are living a race against time for the life of our son Caio, who is facing a rare and degenerative disease. If you can, please help us by sharing this crowdfunding campaign. Just sharing already makes a big difference 🙏 🔗 https://vaquinhadorazoes.com/vaquinha... Thank you so much from the bottom of my heart 🤍 https://salveocaio.carrd.co/ ______________________________ 🤝🏻Sponsorship: @maisgene_ We simplify genetics to help you understand your body 🧬 Diagnosis | Prevention | Treatment 🏠 Take your test at home https://maisgene.com.br/ beacons.ai/maisgene ___________________________________________ Discover our Atypical Motherhood platform: https://acesseme.com.br   / acesse_me   📣 Subscribe to the channel: https://bit.ly/inscrevasenovozdasmaes __________________________________________ 🎁Voz das Mães Store: https://reserva.ink/329598 ___________________________________ 📱Instagram: @vozdasmaes @natilopesrodrigues 🎶 Music: Ser Mãe - @danielpanthro ___________________________________