Young Woman is Only 1 in AL Currently Diagnosed with Lafora Disease | News 19 at 4:30 p.m.

Name: Young Woman is Only 1 in AL Currently Diagnosed with Lafora Disease | News 19 at 4:30 p.m.
Uploaded: 2024-05-20T00:00:00.000Z
Description: Khari was diagnosed with an ultra-rare genetic disorder called Lafora Disease. Now 21 years old, this means that she now relies on adult services for assistance instead of children

Khari was diagnosed with an ultra-rare genetic disorder called Lafora Disease. Now 21 years old, this means that she now relies on adult services for assistance instead of children's. This brings with it a new set of obstacles to accessing healthcare.

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