Cancer Survivor Story: Non-Hodgkin Lymphoma, Stage 4 (Diffuse Large B-Cell and Burkitt Lymphoma)

Erin is a cancer survivor. This is her story. She had Non-Hodgkin Lymphoma (Non-Hodgkin's) and is in remission after undergoing chemotherapy (R-CHOP, Hyper-CVAD, and Methotrexate, rituximab (Rituxan), Cytarabine) for her NHL subtype - seemingly a mix between diffuse large b-cell and burkitt lymphoma. This is the full video of her story: how she was diagnosed, what chemo was like, how she dealt with side effects, the importance of being your own advocate, and more. See her full story at www.ThePatientStory.com. Direct link: https://www.thepatientstory.comcancer... 1. GETTING A DIAGNOSIS ( 0:10) First symptoms of cancer Primary care visit Gastroenterologist visit Getting a colonoscopy Processing a cancer diagnosis Breaking the news of cancer to loved ones 2. . TREATMENT DECISIONS & SCANS ( 13:20) Next steps Getting a bone marrow biopsy Undergoing a CT scan How long does it take to get CT scan results Did you experience “scanxiety” waiting for test results Cancer stage Diffuse large b-cell and Burkitt lymphoma diagnosis 3. FERTILITY & IVF ( 20:05) Preserving fertility before chemotherapy Who brought up the issue of IVF What’s the IVF process like How’s the egg retrieval process Small dose of chemo during IVF 4. CHEMOTHERAPY ( 25:06) Describe the port surgery Did you like the port Mentally preparing for chemo Describe the chemotherapy regimen Combo chemo regimen to address your “combo diagnosis” Checking into the hospital How long were the chemo infusions and hospital stay Your chemo was “dose-adjusted” 5. CHEMOTHERAPY SIDE EFFECTS (30:21) Describe the side effects What helped prevent or lessen the side effects How to pass the time in between chemo cycles Side effects got better Losing hair from chemotherapy Deciding to shave your head Blood transfusions Neutropenia & Neulasta (Pegfilgrastim) shots Neulasta side effects 6. END OF TREATMENT (50:43) Mid-treatment scan “In remission” You still had to finish the chemo regimen Follow-up Protocol COVID-19 and cancer 7. GETTING SUPPORT (59:02) What do you wish you had known before treatment What helped get through the toughest times How to ask people for help and support How people can support cancer patients Be your own advocate _________ Background: The Patient Story turns in-depth interviews from recent cancer survivors into a FAQ format story along with timelines to give newly diagnosed patients and caregivers a sense of what their lives may look like in the upcoming months. Hear straight from the people who've already been through it. TPS (formerly OneDavid) was started by Stephanie Chuang, a non-Hodgkin lymphoma survivor, who wants cancer patients and caregivers to get the information they need in a human way, not with medical jargon. Visit www.ThePatientStory.com for more. If you would like to share a story, give feedback, or just say hello, we'd also love to hear from you! Please write us at [email protected].